The hands, feet, and other high-friction areas are especially vulnerable to blistering and skin injury in Epidermolysis Bullosa (EB). These challenges can cause pain and discomfort and interfere with hand function, mobility, and everyday activities. In some types of EB, repeated injury and scarring can also lead to contractures and changes in the structure and function of the hands and feet.
Specialized care can help reduce friction, protect the skin, manage complications, and preserve function and mobility.
Explore the resources below for guidance and practical information on hand and foot care in EB.
Hand Surgery & Therapy
For Recessive Dystrophic EB (RDEB), blistering and scarring of the hands may result in fused web spaces and altered function. Surgery may be recommended to improve movement and function, with hand therapy playing an important role in maintaining surgical results.