Pain and itching are common and often persistent challenges for people living with Epidermolysis Bullosa (EB). They may be related to wounds, healing skin, dryness, inflammation, or other complications of EB and can affect sleep, movement, daily activities, and overall quality of life. Understanding what may be contributing to pain and itch can help individuals and families work with their healthcare team to identify strategies for relief and management.
The resources below provide information on pain and itch in EB, approaches to management, current research, and clinical guidance:
Pain Care for Patients with Epidermolysis Bullosa: Best Care Practice Guidelines
At the 2026 debra Care Conference (DCC), Michael Lavery, MD presented on Managing Itch and EB. Watch the full presentation below.