
A Supporter Led Event is a fundraising event led by a proud supporter in their U.S. local area to help fund debra of America’s mission to improve the quality of life for those living with EB.
Interested in hosting your very own Supporter Led Event? They come in all shapes and sizes, and can be defined by you, the supporter! We’re here to help you every step of the way.
Learn more about hosting a Supporter Led Event
Upcoming Events
Flutter for a Cure 5K
Saturday, October 25th, 2025
St. Louis, Missouri
Hosted by ER nurse Alysha Cannon, this fun-filled, family-friendly event is dedicated to raising funds and awareness for EB in support of debra of America. Whether you run or walk, go at your own pace as we come together for a great cause at Tower Grove Park. Virtual registration is available!

2025 Hope in Her Footsteps: Leah’s Walk for EB Awareness Week
Saturday, November 8, 2025
Lake Butler, FL
Please join host Ashley and Ricky Lynch as they walk in honor of Leah, their daughter who lives with RDEB, to raise awareness and vital funds for debra of America. Let’s come together to show up, show love, raise funds, and make a difference. Leah is the only person in Union County living with EB. We will walk for Leah, for all those living with EB today, and in memory of those we’ve lost whose courage and legacy fuel our mission. Join us on Saturday, November 8th at 8: 00 a.m. at the Union County Public Library, Lake Butler, Florida at 8:00 a.m. Walk with us for Leah, for the EB Community, and for hope.
REGISTRATION IS FREE!