Rafi Kopelan


Thank You! 

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Thank you for supporting debra of America in our mission to improve the lives of those impacted by Epidermolysis Bullosa (EB), “the worst disease you’ve never heard of.” 

Your support allows us to fund the most innovative research directed at symptom relief and a systemic cure, to provide essential programs and services to people with EB and their families, and to advocate on behalf of the thousands living with this painful disease.  

Our work would not be possible without supporters like you. 

- The debra of America Team 

EB Family Personal Stories

Get to know the incredible people who make up our Epidermolysis Bullosa (EB) Community.

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Events Upcoming Events

Join fellow supporters and advocates at events, big and small, across the country.

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Bracelets debra Shop

Purchase with purpose! Pick from our collection of soft tees, awareness bracelets, and more —and spread EB awareness wherever you go.

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