Sunday, July 26, 2026
LAX Marriott | Los Angeles, California
For the first time ever, the debra of America Gala is coming to the debra Care Conference (DCC) for an unforgettable opening night! The DCC Celebration: The 2026 debra of America Gala will bring together EB families, supporters, and partners under one roof to honor the great progress made in EB care and research, and to fuel the work still ahead.
The evening will feature passed hors d'oeuvres, dinner, silent auction, entertainment, and a presentation of community awards.
Tickets to the DCC Celebration are included for all EB families registered for the conference. Additional a la carte Celebration tickets are available for purchase below for those not otherwise included.
All proceeds from the DCC Celebration will directly support debra's ongoing commitment to improving the lives of individuals and families living with EB.
What is Epidermolysis Bullosa (EB)?
Epidermolysis Bullosa (or EB, for short) - "The Worst Disease You've Never Heard Of" - is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters and tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30.
While there is still no cure for Epidermolysis Bullosa (EB), hope is no longer out of reach. Thanks to decades of tireless work and collaboration, treatments are now available that help ease some of the most painful and debilitating symptoms of certain types of EB. As of 2025, three therapies have been approved by the U.S. Food & Drug Administration—marking a historic shift in the landscape of care and a powerful step forward for individuals and families affected by this devastating disease.
There are about 25,000 people living with EB in the US. It occurs in every racial and ethnic group and affects both genders equally. Click here for a more in-depth and comprehensive understanding of EB.
About debra of America
debra of America's mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) — “The Worst Disease You’ve Never Heard Of.” We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.
Each year, debra of America spends an average of $1.5 million on direct-to-patient programs and services to provide immediate relief to thousands of families across the country. Our research funding identified the genetic basis of EB and supports the science, which is at the forefront of gene and stem cell therapy, RNA repair, protein replacement, and inhibition of squamous cell carcinoma.
Become a Sponsor
For questions or for more information about Sponsorship and Ad Opportunities, please call 212-868-1573 x102 or email events@debra.org.
Press & Media
For press & media inquiries for the DCC Celebration: The 2026 debra of America Gala, please email events@debra.org.
Questions?
Please email events@debra.org or call 212-868-1573 x102.
Related Resources
Our Mission
“Because the cost of doing nothing is too great” is an axiom that defines our mission and directs all of debra of America’s actions as an organization.
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Donate
Make a tax-deductible gift that directly impacts the thousands living with "the worst disease you've never heard of."
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Video Stories
See Epidermolysis Bullosa (EB) up close and personal in the video stories of individuals impacted by EB.
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