A Supporter Led Event is a fundraising event led by a proud supporter in their U.S. local area to help fund debra of America’s mission to improve the quality of life for those living with EB.
Interested in hosting your very own Supporter Led Event? They come in all shapes and sizes, and can be defined by you, the supporter! We’re here to help you every step of the way.
Learn more about hosting a Supporter Led Event
Upcoming Events
2025 Hope in Her Footsteps: Leah’s Walk for EB Awareness Week
Saturday, November 8, 2025 | 8 AM
Union County Public Library
Lake Butler, Florida
Please join hosts Ashley and Ricky Lynch as they walk in honor of Leah, their daughter who lives with RDEB, to raise awareness and vital funds for debra of America. Let’s come together to show up, show love, raise funds, and make a difference. Leah is the only person in Union County living with EB. We will walk for Leah, for all those living with EB today, and in memory of those we’ve lost.
Registration is FREE.
Zumba to FIGHT EB
Saturday, November 15, 2025
Washington, DC
Hosted by EB Community member, Leandro Dos Santos. Get ready for a fun, high-energy workout combining lively Latin rhythms with easy-to-follow moves that will tone your body and torch calories.
T-shirts are available at certain registration levels. $25 for class only, $50 to include T-shirt.

