Access to the right information is vital to the overall health of you and your child. At no cost to you, our EB Nurse is here to answer your questions as they relate to many areas of EB care. Get advice today.

Adult hand holding child's hand.

When you have questions about EB, it helps to have an expert to turn to. Sometimes people just want access to healthcare information, resources, support, or even just a calm voice to help settle concerns.

Whether you’re worried about an upcoming surgery, need help learning how to bandage a certain area, or want to ask a question that has been on your mind, our EB Nurse Educator can educate you and help answer questions. Call 866-DEBRA76 (866-332-7276) or email nurse@debra.org


Since 2002, our EB Nurse Educator Program has been a trusted source of accurate, timely information for individuals with EB, their family members, and the medical community. Our EB Nurse can help you when you have questions about health concerns or need EB-care information. 

All calls and emails are kept completely confidential, and common topics include:

  • Treatment options for primary and secondary complications of EBYoung girl
  • Palliative care
  • Wound care
  • Bandaging techniques
  • Genetic testing
  • Clinical trials in progress
  • Physician referrals to related professionals
  • Symptoms, medications and side effects, and more

Not only are our Nurse Educators experts in EB management, but they also provide a caring support system for families living with EB. We are here to help.

Services are available via toll-free phone calls or email. To reach the nurse, contact:

Phone (toll-free): 866-DEBRA-RN (866-332-7276)
Email: nurse@debra.org

Related Resources

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*Please note that all medical information given by debra of America is for informational purposes only. Our information is not intended to substitute the care and guidance given by a qualified physician. All regimens of care should be discussed with the patient's physician. Always check with your physician prior to starting any medications or treatment regimens.