Integrating a student with EB into a public school classroom setting can become a natural part of the school experience for all involved.
Teachers, staff, volunteers and the other students quickly learn the “do’s and don’ts” of working beside a child with EB. By understanding and meeting the unique needs of an EB student, modifications will become a part of daily classroom life.
debra of America’s helpful resources will assist in the transition from home to school by facilitating conversation and teamwork between family and faculty.
Resources for Parents and Teachers
This two-part video was developed by the multidisciplinary Epidermolysis Bullosa Team at The Children’s Hospital of Colorado and is endorsed by debra of America. It is a video guide for making the school experience supportive and academically challenging for students with EB.
debra of America has created business size EB Cards that can be passed out in your school or community - to classmates, parents, neighbors, and at community centers, local stores, and more. These cards quickly explain what EB is and how it affects you/your child.
Passing out an informational sheet about EB to teachers and school administrators will help them learn the basics on EB, and is short enough to be put up in the teacher’s lounge or the main office as a reminder.
Sending a brief letter to your child’s teachers, administrators and school nurse may be appropriate before the academic year begins. Here are some basic guidelines and sample letters you may consider as your child prepares for the school year.
Letter to Teachers/Administrators
Letter to School Nurse
Letter to Parents (for Kindergarten for First Grade, or new to the school system)
It is important for families to understand what educational rights they can rely upon for their betterment of their children’s formal education. debra of America’s Legal Aid Program describes the right for each child with EB to receive a free and appropriate public education.
Parents and school nurses are encouraged to speak with our EB Nurse Educator, a registered nurse experienced in EB care. In addition, we offer free bandages through our Wound Care Distribution Program if you are interested in receiving samples or a care package to keep in the Nurse’s Office. Reach out to us today!
