Adult and child listening to presentation.

Below, you will find answers to commonly asked questions from the following topics:

  • General Information
  • Registration & Overview
  • Payment
  • Accommodations
  • Agenda & Speakers
  • Support the Conference
  • COVID-19 Event Safety and Responsibility

General Information

What is the debra Care Conference (DCC)?

The debra Care Conference (formerly known as the Patient Care Conference) is a national conference specifically designed for the Epidermolysis Bullosa (EB) Community and is held every two years in different cities across the US. debra of America invites those with EB as well as their families, advocates, and care providers to listen to, meet with, and learn from leading medical professionals as well as academic researchers and organizations who are conducting research into treatments and a cure for EB. Bandage manufacturers and distributors also attend and demonstrate their products and services. 

Most importantly, the conference allows those impacted by EB to meet new families and reconnect with others from around the country. debra of America also organizes playrooms and fun activities for the children, as well as socializing time for the whole family. 

It is anticipated that 700 people may attend this conference!  

Who should attend this conference?

The debra Care Conference (DCC) benefits the entire EB Community and offers learning opportunities for individuals and families as well as medical professionals interested in learning more about EB care. Sessions cover topics that aid in the overall health and well-being of an individual with EB. There is also time built-in to network, connect and have fun with peers! Whether you and your family are attending for the first time, or have attended many of our conferences in the past, you will find the DCC rewarding.

When and where is the conference in 2022?

The 2022 debra Care Conference will be held July 17-20th (with hotel stays until the 21st) at the Omni Interlocken Hotel, an award-winning luxurious retreat approximately 30 minutes from The Denver International Airport. 

The hotel's address is 500 Interlocken Boulevard, Broomfield, Colorado 80021

Our conference is typically held in July to accommodate different school start/end dates nationwide and the location is chosen to be easily accessible and cost-effective for all attendees. This venue is an all indoor, temperature-controlled hotel and conference center nestled against the backdrop of the Rocky Mountains.  

Our conference registration includes hotel stay. For more information about the venue, please click here to visit the Omni Interlocken Hotel website.

When can I register for the 2022 DCC?

Registration for the 2022 DCC will open on January 27, 2022. Visit for registration options.


What is the conference dress code?

As long as you are comfortable, we are happy! There is no specific dress code for the conference. Please be sure to avoid attire with any inappropriate language or images. Check out the debra Online Shop if you would like to order EB awareness related apparel prior to the conference.

Visit the debra Shop 

Registration & Overview

How do I register?

Registration may be completed online at or by calling 212-868-1573, ext. 4 beginning on January 27, 2022. 

What is included in registration and what is the cost?

debra of America is able to offer EB Families an all-inclusive rate of $175 per night ($700 grand total for 4 nights) per family of four

The General Attendee Fee for Non-EB Families is $375 per night.

Both types of registration includes:

  • Hotel room (for up to 4 people*)
  • Dinner on Sunday + 3 meals a day on Monday through Wednesday
  • All-Entry Passes to the full conference program, which includes:
    • Latest and most comprehensive EB Care information from the country’s leading EB clinicians 
    • Research updates from the top academic researchers and organizations heading current and future clinical trials 
    • Discussions on the transitional, financial and emotional challenges of EB 
    • Access to a wide range of service providers, including wound care manufacturers
    • Live entertainment and designated play areas for the kids during the span of the conference
    • Family-friendly functions and evening entertainment 
    • Mobile App and printed materials 
  • Opportunity to meet other families and individuals who share the common bond of EB and make life-long connections…and more! 

*A crib for an infant can be added. This is the only case where 5 individuals may stay in one hotel room, per hotel regulations + registration fees.

What about parking?

Parking is free. The Omni Interlocken Hotel offers complimentary self-parking for all guests. 

What meals are covered?

debra of America will be providing the following meals:

Sunday, July 17th: Dinner

Monday, July 18th: Breakfast, Lunch, Dinner 

Tuesday, July 19th: Breakfast, Lunch, Dinner

Wednesday, July 20th: Breakfast, Lunch, Dinner 

These meals are included as part of your registration package, and you will not be charged any additional fees. Please note, Sunday, July 17 is primarily a check-in day, therefore dinner will be served.

Why does the registration form ask for information on all members of my party? Can I just register myself on behalf of my entire family/group?

In order for us to properly assist and serve all those attending our conference, every member of your party must be registered. Registration allows us to plan the conference sessions appropriately, pay for provided meals and other associated events, and track conference attendance.

Registration for each member of your party is mandatory. Each attendee will receive their all-entry pass (conference badge) to the conference and related activities upon check-in at the DCC. Conference badges will be required to be worn at the conference at all times.


How do I pay?

You will be required to submit credit card information and pay in full via the online registration form.

For attendees who are unable to pay in full immediately, you may register over the phone and create a payment plan. Please call 212-868-1573, ext. 4 or email for more information on payment plans and to begin registration. 

Please note, all payments must be made in full by May 31, 2022 or your registration will be cancelled. 


When is the deadline for registering and paying?

Full payment is due May 31, 2022. 

Will my credit card be charged at the hotel?

Registration for the conference includes hotel stay, so your hotel room will be paid for when you check-in. The hotel will still request your personal credit card to be presented during check-in. This credit card number is put on file only for any possible incidentals charges you make during your stay, such as room service or long-distance phone calls. Therefore, you must bring a personal credit card to the hotel for these standard purposes.

If I can’t make it to the conference, can I get a refund?

debra of America is able to cancel your registration and provide a refund up until May 28, 2022 (credit card charges incurred for cancellation process will be charged). Beyond that date, we are unable to give refunds because costs relating to hotel stays, meals, and other conference-related expenses have already been incurred.  

Is financial aid available?

debra of America’s goal to bring as many families together for this experience as possible. To help alleviate the costs involved for each attendee, all registration rates are discounted and drastically reduced from full cost of the conference and hotel stay. Beyond this, we are unable to offer additional financial aid for families.


Tell me about the venue.

The award-winning Omni Interlocken Hotel provides a luxurious retreat between Boulder and Denver, Colorado. The nearest airport is The Denver International Airport, located approximately 28 miles from the resort. Nestled against the backdrop of the Rocky Mountains, this hotel offers a wealth of on-site experiences with stunning panoramic views of the mountains and valley. The conference activities are located on-site.  

For more information about the hotel and venue, please click here to visit the Omni Interlocken Hotel website.

How many people are allowed in each hotel room?

This hotel allows up to 4 people per one hotel room (a fifth person is allowed ONLY if they are an infant that will be sleeping in a crib).

Can I have adjoining rooms at the hotel?

After you register, please email to let us know you’d like adjoining rooms and the names of the primary registrant of each room, and we will submit your request. The hotel will do their best to accommodate this request.

What if I want to stay extra nights before or after the conference?

debra of America’s discounted conference rate only applies to the conference dates (July 17 through July 20, with check-out July 21).  If you require rooms earlier or later than the dates included in our room block, please be aware that regular hotel rates may apply though we will request discounted rates for you. Please contact to coordinate your longer stay. 

Does this venue have parking?

Yes, parking is free at the hotel. 

What is the closest airport?

The Denver International Airport is the closest airport, 28 miles away from the hotel. 

Is there a shuttle from the airport to the hotel?

The hotel does not offer shuttle service, but recommends utilizing Uber and similar car service options available at the airport. 

Agenda & Speakers

What is the conference agenda?

The conference agenda and related activities are currently being finalized.  The 2022 line-up of speakers sessions, entertainment and activities will be posted on this website and announced via our Facebook page and e-newsletter as soon as it becomes available. 

Follow us on Facebook

Sign up for our e-newsletter, The EB Insider. 

What speakers will be presenting?

We are finalizing the list of top medical professionals and researchers who will be presenting at this year’s debra Care Conference. Speaker bios will be posted on our website soon!

What if I want to speak or present at the conference?

Please email if you are interesting in presenting or speaking at the conference.

Support the Conference

Can my corporation sponsor the conference?

This conference would not be possible without the generous support of our sponsors. 

Review our 2022 debra Care Conference “Sponsorship & Exhibitor Opportunities”

Can I purchase EB awareness merchandise at the conference?

Definitely! Merchandise from the debra Shop will be available for purchase on-site at the conference.

Purchase debra Shop items now

Can I make a donation in support of the conference?

Yes! Our conference would not be possible without the support of our generous donors.

Make a donation 

Can I volunteer at the conference?

Absolutely! Our conference would not be possible without the generous contribution of volunteer time and talents. Visit the Guide for more information. Please note, we cannot offer discounted registration rates, free hotel rooms or travel aid for volunteers. 

How can I connect with others about the DCC online?

Use our special hashtags #debraCareConference and #WeFightEB when you’re sharing your comments, questions, photos, and stories about the conference on social media.  

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COVID-19 Event Safety and Responsibility