Adult and child listening to presentation.

Below, you will find answers to commonly asked questions from the following topics:

  • General Information
  • Registration & Overview
  • Payment
  • Accommodations
  • Agenda & Speakers
  • Support the Conference

General Information

What is the debra Care Conference (DCC)?

The debra Care Conference (formerly known as the Patient Care Conference) is a national conference specifically designed for the Epidermolysis Bullosa (EB) Community and is held every two years in different cities across the US. debra of America invites those with EB as well as their families, advocates, and care providers to listen to, meet with, and learn from leading medical professionals as well as academic researchers and organizations who are conducting research into treatments and a cure for EB. Bandage manufacturers and distributors also attend and demonstrate their products and services. 

Most importantly, the conference allows those impacted by EB to meet new families and reconnect with others from around the country. debra of America also organizes playrooms and fun activities for the children, as well as socializing time for the whole family. 

Approximately 600 people attend our biennial conference, making it the largest gathering of the EB Community globally! 
 

Who should attend this conference?

The debra Care Conference (DCC) benefits the entire EB Community and offers learning opportunities for individuals and families as well as medical professionals interested in learning more about EB care. Sessions cover topics that aid in the overall health and well-being of an individual with EB. There is also time built-in to network, connect and have fun with peers! Whether you and your family are attending for the first time, or have attended many of our conferences in the past, you will find the DCC rewarding.

When and where is the 2020 conference?

The 2020 debra Care Conference will be held July 19-22nd (with hotel stays until the 23th) at the Omni Atlanta Hotel at CNN, 100 CNN Center NW, Atlanta, GA 30303. Our conference is typically held in July to accommodate different school start/end dates nationwide and the location is chosen to be easily accessible and cost-effective for all attendees. This venue is an all indoor, temperature-controlled hotel located in downtown Atlanta, 12 miles from the Hartsfield-Jackson Atlanta International Airport. 

Learn more about the Omni Atlanta Hotel at CNN 

When can I register for the 2020 DCC?

Registration will open on January 28, 2020. 

For individuals who have EB or have a member of their immediate household with EB, register here.

For all other attendees, register here.

Tell me more about the venue.

Located in the heart of downtown Atlanta and within the bustling Centennial Park District, this luxury Four Diamond hotel treats you to spectacular views of the downtown skyline or Centennial Olympic Park from chic rooms and suites. Connected to State Farm Arena and the Georgia World Congress Center, they are also the closest hotel to Mercedes-Benz Stadium, home to the Atlanta Falcons professional football team and the Atlanta United FC professional soccer club. The College Football Hall of Fame, World of Coca-Cola Museum, Georgia Aquarium, Children’s Museum of Atlanta are also in close proximity.

This hotel and conference space is an indoor, temperature controlled venue. Conference registration includes hotel stay.

Learn more about the venue 
 

What is the conference dress code?

As long as you are comfortable, we are happy! There is no specific dress code for the conference. Please be sure to avoid attire with any inappropriate language or images. Check out the debra Online Shop if you would like to order EB awareness related apparel prior to the conference.

Visit the debra Shop 
 

I have a question that is not answered on this page. Where can I ask my question?

Email dcc@debra.org or call 212-868-1573, ext. 104 with any questions you may have.

Please know that every question is important to us and we will get back to you as soon as possible.
 

Registration & Overview

How do I register?

Registration may be completed online or by calling 212-868-1573, ext. 102.

For individuals who have EB or have a member of their immediate household with EB, register here.

For all other attendees, register here.
 

What is included in registration and what is the cost?

debra of America is able to offer EB Families an all-inclusive rate of $200 per night ($800 grand total for 4 nights) per family of four. At this all-inclusive rate, you and your family will receive: 

  • Hotel room (for up to 4 people) at the Omni Atlanta Hotel at CNN Center
  • 3 meals a day Monday through Wednesday
  • All-Entry Passes to the full conference program, which includes:
    • Latest and most comprehensive EB Care information from the country’s leading EB clinicians 
    • Research updates from the top academic researchers and organizations heading current and future clinical trials 
    • Discussions on the transitional, financial and emotional challenges of EB 
    • Access to a wide range of service providers, including wound care manufacturers
    • Live entertainment and designated play areas for the kids during the span of the conference
    • Family-friendly functions and evening entertainment 
    • Mobile App and printed materials 
  • Opportunity to meet other families and individuals who share the common bond of EB and make life-long connections…and more! 

The General Attendee Fee for Non-EB Families is $275 per night for the same benefits as described above. Both rates are drastically reduced from the full cost of the conference, in thanks to our generous sponsors and supporters!

What about parking?

Valet parking is available at the hotel for $35-45 a day. This fee is not included in your registration fee. If you are driving in, there are multiple parking garages within walking distance of the hotel. debra of America may post more information for your convenience as it becomes available, however parking may not be arranged through debra of America.

What meals are covered?

debra of America will be providing breakfast, lunch, and dinner on each full day of the conference:

Monday, July 20 – Breakfast, Lunch, Dinner will be served.
Tuesday, July 21 – Breakfast, Lunch, Dinner will be served.
Wednesday, July 22 – Breakfast, Lunch, Dinner will be served.

These meals are included as part of your registration package, and you will not be charged any additional fees. Please note, Sunday, July 19 is primarily a check-in day. We are currently planning our activities for the evening of Sunday, July 19 and will update our attendees when finalized.

Why does the registration form ask for information on all members of my party? Can I just register myself on behalf of my entire family/group?

In order for us to properly assist and serve all those attending our conference, every member of your party must be registered. Registration allows us to plan the conference sessions appropriately, pay for provided meals and other associated events, and track conference attendance.

Registration for the conference is mandatory. Each attendee will receive their all-entry pass to the conference and related activities upon check-in at the DCC.
 

Payment

How do I pay?

Please select a registration option from the main DCC web page to begin the registration process. You will be required to submit credit card information on the online registration form.

Attendees who are unable to pay in full immediately should call 212-868-1573, ext. 102 or email jason@debra.org to discuss payment plan options and start registration over the phone. Please note, all payments must be made in full by May 28, 2020 or your registration will be cancelled.

When is the deadline for registering and paying?

Registration opens for all on January 28, 2020 and will remain open until maximum capacity is reached. Space is limited and we are expecting to be sold out, so please register as soon you can. When registration becomes full, we will create a waiting list for those who still want to sign up. Registration officially closes May 28, 2020 and payment must be made in full by this date.

If full payment is not received by May 28, 2020, your registration will be cancelled, and credit card processing fees will be applied.
 

Will my credit card be charged at the hotel?

Registration for the conference includes hotel stay, so your hotel room will be paid for when you check-in. The hotel will still request your personal credit card to be presented during check-in. This credit card number is put on file only for any possible incidentals charges you make during your stay, such as room service or long-distance phone calls. Therefore, you must bring a personal credit card to the hotel for these standard purposes.

If I can’t make it to the conference, can I get a refund?

debra of America is able to cancel your registration and provide a refund up until May 28, 2020 (credit card charges incurred for cancellation process will be charged). Beyond that date, we are unable to give refunds because costs relating to hotel stays, meals, and other conference-related expenses have already been incurred.

Is financial aid available?

debra of America’s goal to bring as many families together for this experience as possible. To help alleviate the costs involved for each attendee, all registration rates are discounted and drastically reduced from full cost of the conference and hotel stay. Beyond this, we are unable to offer additional financial aid for families.

Accommodations

Tell me about the venue.

Located in the heart of downtown Atlanta and within the bustling Centennial Park District, this luxury Four Diamond hotel treats you to spectacular views of the downtown skyline or Centennial Olympic Park from chic rooms and suites. Connected to State Farm Arena and the Georgia World Congress Center, they are also the closest hotel to Mercedes-Benz Stadium, home to the Atlanta Falcons professional football team and the Atlanta United FC professional soccer club. The College Football Hall of Fame, World of Coca-Cola Museum, Georgia Aquarium, Children’s Museum of Atlanta are also in close proximity.

This hotel and conference space is an indoor, temperature controlled venue. Conference registration includes hotel stay.

Learn more about the venue 
 

How many people are allowed in each hotel room?

This hotel allows up to 4 people per one hotel room.

Can I have adjoining rooms at the hotel?

After you register, please email dcc@debra.org to let us know you’d like adjoining rooms and the names of the primary registrant of each room, and we will submit your request. The hotel will do their best to accommodate this request.

What if I want to stay extra nights before or after the conference?

debra of America’s discounted conference rate only applies to the conference dates (July 19 through July 22, with check-out July 23).  If you require rooms earlier or later than the dates included in our room block, please be aware that regular hotel rates may apply though we will request discounted rates for you. Please contact dcc@debra.org to coordinate your longer stay.

Does this venue have parking?

Valet parking is available at the hotel for $35-$45 a day. This fee is not included in your registration fee. If you are driving in, there are multiple parking garages within walking distance of the hotel. debra of America may post more information for your convenience as it becomes available, however parking may not be arranged through debra of America.

Is there Wi-Fi?

There is unlimited internet access (wired and wireless) in guest rooms and lobby areas. This does not apply to conference area. 

Is the venue wheelchair accessible?

Yes, the Omni Atlanta Hotel at CNN Center is wheelchair accessible.

What is the closest airport?

The Hartsfield–Jackson Atlanta International Airport is the closest airport, 12 miles away from the hotel.

Is there a shuttle from the airport to the hotel?

The hotel does not offer shuttle service but recommends utilizing Uber and similar car service options available at the airport and throughout the city of Atlanta. Attendees may also utilize Atlanta’s public transportation system (MARTA) in order to get to the hotel from the airport.

Agenda & Speakers

What is the conference agenda?

The conference agenda and related activities are currently being finalized.  The 2020 line-up of speaker sessions, entertainment and activities will be posted on this website and announced via our Facebook page and e-newsletter as soon as it becomes available.

Follow us on Facebook

Sign up for our e-newsletter, The EB Insider. 
 

What speakers will be presenting?

We are finalizing the list of top medical professionals and researchers who will be presenting at this year’s debra Care Conference. Speaker bios will be posted on our website soon!

What if I want to speak or present at the conference?

If you are interested in presenting at the 2020 debra Care Conference, please email dcc@debra.org.

Support the Conference

How do I/we become an exhibitor at the conference?

We welcome exhibiting partners from a wide variety of areas within the EB space. 

Review our 2020 debra Care Conference Sponsorship & Exhibitor Opportunities
 

Can my corporation sponsor the conference?

This conference would not be possible without the generous support of our sponsors.

Review our 2020 debra Care Conference Sponsorship & Exhibitor Opportunities 

Can I purchase EB awareness merchandise at the conference?

Definitely! Merchandise from the debra Shop will be available for purchase on-site at the conference.

Purchase debra Shop items now

Can I make a donation in support of the conference?

Yes! Our conference would not be possible without the support of our generous donors.

Make a donation 
 

Can I volunteer at the conference?

Absolutely! Our conference would not be possible without the generous contribution of volunteer time and talents. An official call for volunteers will be posted in February 2020. If you would like more information on volunteering, please email dcc@debra.org. Please note, we do not offer discounted registration rates, free hotel rooms or travel aid for volunteers.

How can I connect with others about the DCC online?

Use our special hashtags #debraCareConference and #WeFightEB when you’re sharing your comments, questions, photos, and stories about the conference on social media.  

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