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The 2020 Virtual debra Care Conference (DCC)

In response to the global pandemic, the debra Care Conference (DCC) will be entirely online this year, and completely free!  

Starting August 3rd through the end of EB Awareness Week in October, access online presentations from top EB experts covering a broad range of topics related to EB care, learn from researchers in the field, and hear updates from the country’s leading EB patient advocacy partners! Most importantly, connect with others who share your journey through virtual social activities and opportunities to network.  

DCC presentations will include on-demand webinars, which are available to view at your convenience, as well as several live webinars.  

All DCC presentations, activities, and resources will be accessible on, a new private online platform for the EB Community. Free for all those in the EB Community.  

Sign up for

For questions, please email, or call 212-868-1573 x104.

What is is a private, online platform designed specifically for those impacted by EB, their family members, researchers, medical professionals, and industry partners. 

Benefits of Joining