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7/2/2020 Important Update

Although we can’t be together in person this year due to the COVID-19 pandemic, we’re excited to announce that the 2020 Virtual debra Care Conference (DCC) will take place from August through the end of EB Awareness Week in October! It will be housed within, a private, online platform specifically designed for the global EB Community, launching on July 22, 2020.

Members will have exclusive access to live and on-demand webinars hosted by researchers, medical experts, and resource professionals. The Virtual DCC will also include social activities for both adults and kids. More details to come soon!

For questions, please email, or call 212-868-1573 x104.