2022 debra of America Benefit Logo

 

Monday, October 24, 2022 | 6:30 - 10:30 PM 
Georgia Aquarium Ocean's Ballroom | Atlanta, Georgia

Join debra of America for our Annual Benefit on Monday, October 24, 2022 at Georgia Aquarium as we celebrate our first drug approval, marking a sea change for our Epidermolysis Bullosa (EB) Community. The evening of honors and celebrations will feature cocktails, hors d'oeuvres, a silent auction, and a seated dinner. 

Proceeds from the Benefit will go directly towards supporting people living with Epidermolysis Bullosa (EB), a painful, often fatal, and always debilitating rare genetic disease.

SpringHill Suites

Book Your Hotel!

For your convenience, a block of rooms has been reserved at SpringHill Suites Atlanta Downtown. Please click the link below to reserve your room online; you can also call the hotel directly at 1-888-236-2427. Please reference the group name "debra of America". Please note that the deadline to book your room is Friday, September 30, 2022. 

SpringHill Suites Atlanta Downtown (across the street from Georgia Aquarium's Ocean's Ballroom!)
239 Ivan Allen Jr. Blvd. NW
Atlanta, Georgia 30313

Reserve a Room
 

debra of America Benefit Photos

 

Mom with child

What is Epidermolysis Bullosa (EB)?

Epidermolysis Bullosa (or EB, for short) - "The Worst Disease You've Never Heard Of" - is a rare connective tissue disorder with many genetic and symptomatic variations. All types of EB share the major symptom of extremely fragile skin that blisters and tears from the slightest friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. There is currently no cure or treatment for EB. Pain management, wound care, and preventative bandaging are the only options available. 

There are about 25,000 people living with EB in the US.  It occurs in every racial and ethnic group and affects both genders equally. For a more in-depth and comprehensive understanding of EB, please click here.

About debra of America

Because the cost of doing nothing is too great. This axiom defines debra of America's mission and directs all that we do. We are dedicated to improving the quality of life for those living with EB. To achieve our mission, we do two things in parallel: we provide free programs and services to the EB Community in the United States, and fund the most innovative research directed at symptom relief and a systemic cure. 

In 2021 alone, our largest program, the Wound Care Distribution Program, sent over $1 Million worth of specialized bandages. That translates to over 108,000 pieces of wound care sent to families across the United States. Our research funding identified the genetic basis of EB and supports the science, which is at the forefront of gene and stem cell therapy, RNA repair, protein replacement, and inhibition of squamous cell carcinoma. 

Thank You to our Generous Sponsors

Become a Sponsor

For questions or for more information about Sponsorship and Ad Opportunities, please call 212-868-1573 x102 or email events@debra.org.


Press & Media

For press & media inquiries for the 2022 Annual debra of America Benefit, please email events@debra.org.


Questions?

Please email events@debra.org or call 212-868-1573 x102.

Georgia Aquarium Photos

 

Related Resources

Infant with EB Our Mission

“Because the cost of doing nothing is too great” is an axiom that defines our mission and directs all of debra of America’s actions as an organization.

Learn More
Young Boy with EB Donate

Make a tax-deductible gift that directly impacts the thousands living with "the worst disease you've never heard of."

Learn More
Ella Video Stories

See Epidermolysis Bullosa (EB) up close and personal in the video stories of individuals impacted by EB.

Learn More