19 Feb Finding Friendship & Confidence: The Power of EB Youth Mentorship [...] By asaparova Comments Read more...
12 Feb Act Now: Protect EB Families by Defending Section 504 [...] By asaparova Comments Read more...
06 Dec Advocating for Access to Genetic Testing for Rare Diseases [...] By asaparova Comments Read more...
12 Nov FDA Decision on New RDEB Gene Therapy Expected by April 29, 2025 [...] By asaparova Comments Read more...
07 Nov Making an Impact with Word Surge: Elisabeth’s Mission to Educate and Give Back [...] By asaparova Comments Read more...
01 Nov A New Dawn for EB: The 2024 debra of America Benefit in LA [...] By asaparova Comments Read more...
29 Oct Abeona Therapeutics Resubmits Application for Promising RDEB Treatment Pz-cel [...] By asaparova Comments Read more...