19 Feb Finding Friendship & Confidence: The Power of EB Youth Mentorship [...] By asaparova Comments Read more...
12 Feb Act Now: Protect EB Families by Defending Section 504 [...] By asaparova Comments Read more...
06 Dec Advocating for Access to Genetic Testing for Rare Diseases [...] By asaparova Comments Read more...
12 Nov FDA Decision on New RDEB Gene Therapy Expected by April 29, 2025 [...] By asaparova Comments Read more...