Get to know the incredible people who make up our Epidermolysis Bullosa (EB) Community.
Through their personal stories, they share their experiences and offer insight into what it’s like to live with EB or have a loved one affected by it.
Do you have a story to tell? If you live with EB or care for someone with EB, please email us at staff@debra.org. We’d love to hear from you!
Jose Vivanco
Abdullah Arekat
In Loving Memory
Winnie Bruce
Savanah Zech
James Dylan
Jane Scherlag
Annie Keys Kendrick
Walker Family
In Loving Memory of Chance Walker
Faith Smith
Melissa Barriga
Veronica Stewart
Zora Rowe Redd
Jan Marhefka
Aaran Schrader
Ella Suchocki
Carter Dvorak
Abby Jones
Jennifer Kim
Jeremiah Marshall
Nicole Esser
Sarah Morrill
Bowen Kim
Mark Feather
Solomon Bonner
Destiny Fuentes
In Loving Memory
Lindsay Martin
Anjali Rajan
Andrew Conrad
Hodges R. Caldwell, Jr.
Williams Family
Warren Lee Abeyta
In Loving Memory
Jack Hartmann
Melissa Curtis
Monique McKissick
In Loving Memory
Sarah Oliveira
Bruce Gunn
In Loving Memory
Kristin Nugent
EB to Me
In 2014, we ran an “EB to ME” campaign that asked the Community to tell us, in their words, what EB means to them.
