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Personal Stories

Debra

  • EB in Depth
  • Clinical Trials
  • Personal Stories
  • Video Stories
  • EB in the News

Get to know the incredible people who make up our Epidermolysis Bullosa (EB) Community.

Through their personal stories, they share their experiences and offer insight into what it’s like to live with EB or have a loved one affected by it. 

Do you have a story to tell? If you live with EB or care for someone with EB, please email us at staff@debra.org. We’d love to hear from you! 

Winnie Bruce

Winnie Bruce

Savanah Zech

Savanah Zech

James

James Dylan

Jane Scherlag

Jane Scherlag

Annie Kendrick

Annie Keys Kendrick

The Walker Family

Walker Family
In Loving Memory of Chance Walker

Faith Smith

Faith Smith

Melissa Barriga

Melissa Barriga

Veronica Stewart

Veronica Stewart

Zora Rowe Redd

Zora Rowe Redd

Jan Marhefka

Jan Marhefka

Aaran Schrader

Aaran Schrader

Ella Suchocki

Ella Suchocki

Carter Dvorak

Carter Dvorak

Abby Jones

Abby Jones

Jennifer Kim

Jennifer Kim

Jeremiah Marshall

Jeremiah Marshall

Nicole Esser

Nicole Esser

Sarah Morrill

Sarah Morrill

Bowen Kim

Bowen Kim

Mark Feather

Mark Feather

Solomon Bonner

Solomon Bonner

Destiny Fuentes

Destiny Fuentes
In Loving Memory

Lindsay Martin

Lindsay Martin 

Anjali Rajan

Anjali Rajan 

Andrew Conrad

Andrew Conrad 

Hodges R. Caldwell, Jr.

Hodges R. Caldwell, Jr. 

Williams Family

Williams Family

Warren Lee Abeyta

Warren Lee Abeyta 
In Loving Memory

Jack Hartmann

Jack Hartmann 

Melissa Curtis

Melissa Curtis 

Monique McKissick

Monique McKissick 
In Loving Memory

Sarah Oliveira

Sarah Oliveira 

Bruce Gunn

Bruce Gunn 
In Loving Memory

Kristin Nugent

Kristin Nugent 

EB to Me

In 2014, we ran an “EB to ME” campaign that asked the Community to tell us, in their words, what EB means to them. 

Read their responses 

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© Copyright 2023, debra of America, All Rights Reserved | The Dystrophic Epidermolysis Bullosa Research Association of America, d/b/a debra of America is a registered 501(c)(3) tax exempt organization. | All Trademarks and Brands are Property of Their Respective Owners. debra of America does not endorse any drugs, tests, or treatments that we may report. This website is for informational purposes, always check with your physician before adopting any medical treatment. | EIN: 11-2519726

Debra

  • About Us
    • What We Do
    • Meet the Team
    • DEBRA International
    • Donor Privacy Policy
    • Annual Reports & Financials
    • Downloadable Materials
    • Contact Us
  • About EB
    • EB in Depth
    • Clinical Trials
    • Personal Stories
    • Video Stories
    • EB in the News
  • How To
    • Care for Wounds
    • Care for Blisters
    • Care for Newborns
    • Choose Products
    • Prepare a Bath
    • Recognize Infection
    • EB Care Tips
  • Get Help
    • Wound Care Distribution
    • EB Nurse Educator
    • New Families
    • Legal Aid
    • Smile Fund
    • Mentorships
    • debra Care Conference
    • Connect with Others
    • Other Resources
  • Get Involved
    • Ways to Give
    • Fundraise
    • Host a Supporter Led Event
    • Government Advocacy
    • Join an Action Group
    • Internship
    • Volunteer
    • Purchase with Purpose
    • Subscribe to Emails
  • Events
    • debra-Hosted Events
    • Supporter Led Events
    • TEAM DEBRA
    • Awareness & Advocacy Events
  • Search
  • Donate